Associate Director, Patient Engagement GDNF

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AskBio Inc., a wholly owned and independently operated subsidiary of Bayer AG, is a fully integrated gene therapy company dedicated to developing life-saving medicines and changing lives. The company maintains a portfolio of clinical programs across a range of neuromuscular, central nervous system, cardiovascular, and metabolic disease indications with a clinical-stage pipeline that includes investigational therapeutics for congestive heart failure, limb-girdle muscular dystrophy, multiple system atrophy, Parkinson's disease, and Pompe disease. AskBio's gene therapy platform includes Pro10™, an industry-leading proprietary cell line manufacturing process, and an extensive array of capsids and promoters. With global headquarters in Research Triangle Park, North Carolina, and European headquarters in Edinburgh, Scotland, the company has generated hundreds of proprietary capsids and promoters, several of which have entered pre-clinical and clinical testing. Our vision: Pioneering science to create transformative molecular medicines. Our mission: Lead innovative science and drive clinical outcomes to transform people's lives. Our principles: Advance innovative science by pushing boundaries. Bring transformative therapeutics to patients in need. Provide an environment for employees to reach their fullest potential. Our values: Be a Pioneer. We are not afraid of the impossible and to innovate to make gene therapies accessible to those in need. Cultivate Collaboration. Strive to be the best teammate, actively listen, openly communicate, and embrace diverse points of view. Embrace Responsibility. We are humbled by the enormity of our mission. We hold a relentless commitment to advance science and clinical outcomes for our patients, families, and caregivers. Raise the Bar. Continuously drive improvements and efficiencies. Seek and provide constructive feedback. Have a bias for learning and action. Act with Uncompromising Integrity. Be honest, transparent, and committed to doing what's right in every situation. Make clear commitments and follow through. Position Summary We're looking for an Assoc Director, Patient Engagement in the US to help us expand what's possible for patients living with rare and more common diseases. Reporting to the VP, Global Head of External Engagement and Public Affairs in Medical Affairs, this individual will play a pivotal role in building and leading US-based patient advocacy engagements and collaborations focusing on central nervous system diseases (Parkinson's Disease (PD), Multiple System Atrophy (MSA)). The primary goal for this role will be to cultivate positive relationships with patient communities, advocacy groups and individual patients affected by PD/MSA to better understand their needs, experiences, and challenges. This individual will be instrumental in providing the patient voice and perspective as we design and implement our clinical development programs. You will be the bridge between patients, patient organizations, and our organization, ensuring their perspectives shape our decision-making processes, clinical development strategies, and patient empowerment initiatives. You will lead US-based engagements with patient groups by setting the strategy and leading execution to evolve disease and gene therapy understanding and education. This is a remote-based role in the United States. Job Responsibilities Develop and implement an external engagement strategy for our PD and MSA programs aligned to internal business needs and external community needs Manage patient advocacy and external engagement to support AskBio's development and commercial strategies in Parkinson's Disease (PD) and Multiple System Atrophy (MSA) Identify, develop, and cultivate trust-based relationships with patient advocacy and key patient/caregiver organizations consistent with the phase of development of AskBio clinical programs in CNS Be responsible for the development and execution of the PD/MSA medical affairs patient advocacy/external engagement plan and ensure its alignment with overall PD/MSA program goals and key deliverables Participate in and support patient organization events, workshops, and conferences to elevate gene therapy awareness and champion patient community engagement, as directed Participate as an active member of cross-functional study teams that are responsible for ensuring on-time recruitment and retention of participants for clinical studies Create and oversee quarterly community newsletter (AAVengers) for the community Communicate progress, metrics and milestone status for PD/MSA to leadership, R&D partners and others Engage with patient advocacy groups, foundations, and individual patients to understand their point of view and needs as it relates to patient-focused drug development Establish and maintain strong relationships with key collaborators in the patient community Collaborate with cross-functional teams to ensure patient perspective is internally

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