Serve as the primary point of contact with patient organizations in Mexico, Central America, and Ultragenyx.
Interact with appropriate staff to facilitate the coordination of local tactics specific to patient advocacy.
Hold meetings/teleconferences with key stakeholders prioritized in advocacy strategies to leverage national advocacy resources and ensure alignment with development priorities and efforts to enhance program awareness and patient support.
Attend key events/meetings/conferences and conduct surveys and research to generate new patient referrals.
Analyze advocacy group resources needs to help identify gaps in disease awareness resources and facilitate the information requirements of prioritized advocacy groups.
Represent patient perspective during planning strategy meetings and contribute to the successful implementation and achievement of objectives.
Identify and prioritize all patient organizations and affiliated healthcare professional groups that may serve as channels for advocacy engagement, leading outreach to patients/physicians and reporting on key metrics.
Manage critical relationships with stakeholders and patient advocacy groups through the compliant exchange of complex scientific information related to Ultragenyx's research, product development, and (eventual) commercialization efforts.
Support and oversee the NPP (Named Patient Program) process as needed.
This position will maintain a primary focus on supporting Mexico and Central America.
Requirements
Proven experience in project management and Advocacy
Experience with NPP access processes in Mexico.
Experience of NGO management
Deep understanding of patient personal information management and relevant legislation for patient interactions.
Experience in Patient Support Programs a plus
Bachelor's degree in communication, psychology, or NGO management.
Fluency in English and Spanish. #LI-CT1 #LI-Hybrid
Travel: approximately 40%.
Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
Generous vacation time and public holidays observed by the company
Volunteer days
Long term incentive and Employee stock purchase plans or equivalent offerings
Employee wellbeing benefits
Fitness reimbursement
Tuition sponsoring
Professional development plans
Benefits vary by region and country
Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expre
Benefits
Health insuranceVision insurancePaid time offEquity / stock options
Additional Information
Why Join Us?
Be a hero for our rare disease patients
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won't go - challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth - so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team .
Position Summary:
ultra dedicated - Your biggest challenges yield rare possibilities
This individual will be a part of the LATAM P atient A dvocacy function leading the advocacy efforts for Mexico and Central America. The Manager works in close collaboration with the local Mexican team to lead the development and execution of the local advocacy plan that reflects the priorities and needs of the business . Externally, the Manager of Patient Advocacy will develop productive partnerships and facilitate dialogue with patient advocacy groups to further mutual interests and transform the care of patients. Internally, this role will be responsible for incorporating the patient voice into the everyday operations of the company, nurturing Ultragenyx's resolute sense of urgency and patient-focused culture.
Work Model:
Flex: This role will typically require onsite work 2-3 days each week, or more depending on business needs. In many locations, the business will set certain days each week that Flex employees are required to be onsite. This is a Contractor position for an initial period of 12 months.
Ultragenyxpharmaceutical · Mexico City, Mexico