Duchenne Nurse Educator

Benefits

Additional Information

Why Sarepta? Why Now? The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne. We're looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients. What Sarepta Offers At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas: Physical and Emotional Wellness Financial Wellness Support for Caregivers For a full list of our comprehensive benefits, see our website: https://www.sarepta.com/join-us The Importance of the Role The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment. The DNE will support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs. This role develops relationships with HCP's, patients, and caregivers to support both the HCP's and the families through their journey on therapy. The DNE also collaborates closely with their cross functional partners to ensure ongoing compliance with therapy. This position will cover Maine, New Hampshire, Vermont, New York, Massachusetts, Rhode Island, Connecticut, New Jersey The DNE is assigned to special projects as required, such as providing nurse triage support during 24-hour on-call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. On this special project, the DNE serves as a connection between patient care teams and an experienced physician with deep Duchenne and precision medicine expertise and provides in the moment guidance to patient care teams, if needed, while adhering to organizational policies, procedures, and guidelines. The Opportunity to Make a Difference The DNE will educate providers, infusion nurses, patients, and caregivers on Sarepta's approved therapies for DMD and the infusion process. Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.) Stay current on the DMD environment. Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCP's patients, and families. Present to audiences compliantly. Conduct Programs for disease state awareness. Assist in improving infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices. Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies. Support to patients and families as requested by case manager or health care provider. Attend advocacy meetings and represent Sarepta at industry conferences. Travel to training meetings, medical offices, and home health agencies, as necessary. Other related duties as required. Special projects including triage nursing support: Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts. Intake and interpret different nuances of medical information to triage calls appropriately. Communicates and acts as a liaison between patient's care teams and an experienced physician in a confidential manner. Documents calls according to established guidelines (PV reporting). Directs the patient care team to the proper Customer Service Center (e.g., Medical information, SareptAssist) based on the topic of the call. Requires on call coverage to provide day, night, and weekend coverage. More about You Registered Nurse with a bachelor's degree (BSN/BS/BA) from an accredited school. At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred. Prefer 2 or more years' experience in the pharmaceutical/biotech industry. Highly interested in educating on the disease state of Duchenne and working with health care professionals to support patients and families. Exceptional presentation, verbal, and written communication skills Demonstrates team-based skills collaborating with cross functional partners, both internally and externally. Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology. Empathetic, friend